The Canadian Press

2015-05-27 | Rare Diseases

Preview Clip

Advocates for people who suffer from a rare disorder known as PKU want Ontario to change criteria that they say is preventing patients from accessing the drug Kuvan, which costs 70-thousand-dollars a year. John Adams, whose 28-year-old son has PKU, says even though Ontario agreed to cover Kuvan for some patients in 2013, not one met the qualifications to have the drug paid for by the province. (Health Minister Eric Hoskins says if people are being denied access to Kuvan and specialists are saying the criteria could be better, the province will review the situation.)

Date: 2015-05-27
Placeline: TORONTO.
Source: The Canadian Press
Length: 18 seconds

Transcript Prediction: << the drug was listed for review on a case-by-case basis but after two years not a single patient has access to this drug through the Ontario drug program why because Ontario's highly restrictive criteria are preventing patients from qualifying for Public Funding for this brain protecting treatment >>