The Canadian Press

2015-11-23 | Ont Rare Diseases

Preview Clip

A Progressive Conservative MPP is calling for a provincial all-party committee to look at the treatment of rare diseases. Michael Harris says people who suffer from rare diseases have endless hurdles, from getting a correct diagnosis in the first place, to specialist referrals, to medication and out-of-country treatment. Ian Stedman had symptoms of full-body rashes, fevers and joint pain most of his life, visiting his doctor nearly 200 times before he was 18. He says it wasn't until he had a daughter and noticed she had similar symptoms that he took a diagnosis into his own hands. (Harris will be introducing a private member's motion in the new year to strike a committee to tour the province, hearing from experts and people with rare diseases in order to develop a comprehensive strategy.)

Date: 2015-11-23
Placeline: TORONTO.
Source: The Canadian Press
Length: 15 seconds

Transcript Prediction: << I took it upon myself to start researching because I realized it must have been genetic and it was at the age of 32 that I was able to diagnose myself and my daughter and contact a doctor at SickKids to confirm the diagnosis >>